Tuesday, August 31, 2004

Well Mum got in about half nine, Uncle G dropping her off and one of those Hayes manual book things so we can take (basic) care of Marvin.
Dad finally got a bed about 5-ish which meant it was far too late to start the drug test but they took blood test and hopefully will get it done tomorrow and he won't need to stay in any longer than what they said originally.
You can use your own opinions about the NHS / bed situation if you like, I'm not going to comment cos I'm grateful that the very first time, the most serious (so far) they found him the bed and did not send him home when he wanted to go, thinking that there was nothing wrong with him.
Anyway, He's ok, he's got aches and pains in his side but those are the kinda pains that normally come up when he's scared and worried about something.
Its a very scary thing, they're basically giving him a drug for people with Crohms disease which takes away his immune system, being told that a simple cold can kill you as a result of this drug is kinda freaky.
But as he says the first trial worked ok on 8 out of 16 people, and if you work on that principle I guess the odds are good, and even if it gives him another month (with a good quality of life, I'm not talking about another month in a hospital ward) then surely those odds are worth taking?
Mum took me setting the microwave alight pretty well, I told her when she rang so she could do her nut at the hospital (very quietly) and be over the most of her temper by the time she got home.
And it worked she just told me not to touch the microwave again (a bit of a trauma cos I do most of me cooking on that) and lit some candles and sprayed some freshener around to get rid of the smell.
Full round of applause must go to The Brat for actually noticing the smoke and smell (he was upstairs I was downstairs), if he hadn't have come running down the stairs when he did; God only knows what would have happened.
Mum's going back up the hospital tomorrow, hopefully she'll come home with Dad.

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